Learning That I Have Cystic Fibrosis
“I was 8 years old when it was revealed that I have Cystic Fibrosis.
Learning that I have CF helped to answer a lot of questions and it was the beginning of getting the correct treatment.”
Cystic Fibrosis is identified in most children either at birth or by two years old.
It is most common in people of Northern European decent. CF was believed to not be very common in brown skin people and as a result, tends to go mis-diagnosed and un-diagnosed for years or even for life in people of color.
Knowing some of the symptoms and the signs can help with proper detection and early revelation of the condition.
About This Site
This website was created to show my journey, support others with CF and bring awareness to CF and other not so well known conditions that our friends and family live with and are impacted by.
“Revealed” not “Diagnoised”
I use the word “revealed” and “revelation” instead of “diagnosed” because Cystic Fibrosis is a genetic condition that we are born with and it it is “revealed” that we have it. We don’t catch it or get diagnosed with it.
REVEALED
GETTING STARTED
CONTENT CREATION
I was eight years old when I learned that I have Cystic Fibrosis.
Life was immediately different, but I have an amazing team and support staff that helped make the transition as easy as possible.
Now I focus on telling my story as well as highlighting folks living with CF and other conditions and helping them to tell their story as well.